Jaxson’s Story

Our son, Jaxson, came into this world on May 28, 2026, and from the very beginning, our journey into parenthood looked very different than we ever imagined it would.

Jaxson struggled with feeding almost immediately. While other newborns seemed to gradually eat more and grow stronger, feeding was incredibly difficult for him. He was sleepy during bottles, took very small amounts, and struggled to gain the weight his little body desperately needed.

Then, only a few weeks into his life, we learned that Jaxson had pulmonary valve stenosis, a congenital heart defect that causes narrowing of the valve responsible for allowing blood to flow from the heart to the lungs. What was initially considered moderate progressed to severe pulmonary valve stenosis.

At the same time, his feeding difficulties continued to become more complicated.

When Jaxson was just over a month old, he was hospitalized for poor weight gain and eventually needed an NG feeding tube placed through his nose and into his stomach. Since then, so much of our daily life has revolved around feeding pumps, formula, medications, appointments, specialists, feeding therapy, testing, vomiting, reflux, coughing, gagging, and trying desperately to help him gain weight and become strong enough for what was ahead.

There have been days when Jaxson has vomited entire feeds despite every adjustment we could think of. We have watched him go from attempting bottles to struggling to tolerate them at all. We have spent countless hours troubleshooting his feeding pump, changing schedules and rates, trying different formulas, talking with specialists, and searching for answers.

Through everything, he has remained the sweetest little boy.

He loves to kick his legs, he gives us the most precious smiles when we kiss his cheeks or do something he enjoys, and somehow, despite everything his tiny body has already been through, he continues to amaze us.

Now, at not even three months old, Jaxson is preparing for heart surgery on August 25th to treat his severe pulmonary valve stenosis.

As his parents, we would do absolutely anything for him. But having a medically complex baby comes with a financial burden that is difficult to describe until you are living it.

I have had to step away from working because caring for Jaxson has become a round-the-clock responsibility. My husband is currently the only one working to financially support our family, but even his income has been affected because he has had to miss work for Jaxson’s appointments, hospitalizations, testing, procedures, and now his upcoming heart surgery.

There are medical expenses, specialized feeding supplies and formula, medications, travel, gas, meals away from home, and countless unexpected expenses that come with caring for a medically complex child. On top of the fear you already carry for your baby, the financial stress can become overwhelming.

And that is where Clemy’s Crew came into our lives.

Clemy’s Crew generously provided our family with financial assistance to help with Jaxson’s medical needs and the travel and expenses surrounding his upcoming heart surgery.

It is difficult to put into words what that generosity means to us.

Their donation didn’t simply help pay an expense. It gave our family room to breathe during one of the most difficult seasons of our lives. It meant that while preparing to hand our baby over to a medical team for his heart procedure, we had one less thing weighing on our shoulders.

When you have a medically complex child, people often see the appointments, procedures and hospital stays. What they don’t always see are the thousands of smaller things happening behind the scenes—the missed days of work, the sleepless nights, the feeding pump running for hours, the medical supplies filling your home, the constant travel, and the mental load of trying to make the best decisions for someone you love more than anything in the world.

Organizations like Clemy’s Crew step into that unseen part of a family’s story.

They remind families like ours that we don’t have to carry every piece of this alone.

We will never forget the kindness that Clemy’s Crew showed our family during such an important and vulnerable time in Jaxson’s life. Their generosity will forever be part of his story and part of the village that helped carry our family toward his heart surgery.

To everyone who donates to, supports, shares, volunteers with, or tells another family about Clemy’s Crew: please know that your support reaches real families.

Families like ours.

It reaches a mom and dad trying to stay strong for their baby. It helps cover the trip to the hospital. It helps with medical expenses. It replaces some of the income lost to another appointment or procedure. And sometimes, most importantly, it reminds exhausted parents that someone sees what their family is going through and cares enough to help.

From the bottom of our hearts, thank you, Clemy’s Crew, for helping our family and for being part of Jaxson’s story.

We still have a journey ahead of us, but because of people and organizations like you, we don’t have to walk every part of it alone.

With all our love and gratitude,
Jaxson’s family